Again, I’m writing a post at 3:30 am, but this time I’m not crying. Since this blog exists so I can purge what’s on my mind, I’ve decided to write in hopes that it will allow me to sleep (however much time I still have left).
I’ve come to feel, over the past month or so, that we lost much more than just our mother. We lost our family as we know it, and the dynamics have completely changed. This was to be expected, I guess, to a certain degree, though I honestly didn’t think about it when she was dying.
But we’ve lost so much more. The family and friends of the family who we would see on a regular basis (at least a few times a year), who we have seen once or twice, for example (excluding my mother’s memorial, since that doesn’t count as fun). I promise that I am not angry – I know that my immediately family doesn’t not own exclusive rights to mourning my mother.
With all the good intentions possible, and as much as some people keep in touch (and others really don’t, and I don’t care, for the most part), once the initial mourning period passed, everyone had to go on with their lives. This includes us, of course, and my mom’s friends and other family members.
The thing is, that along with the dreams of having my mom at my wedding and babysitting my kids, a few other dreams have died. People who would have us over – basically since birth – at least a few times a year for little celebrations, holidays, or just because, suddenly overlooked us during these events this year.
It’s OK – no one owes us anything. We aren’t their children or their responsibility. However, my dreams used to include many of these people, and I’ve come to realize that these dreams have passed with my mother. This isn’t out of cruelty – having spoken to one of the people today, I fully understand her pain the hard year she’s had in losing her best friend. On our side, however, it feels like we have been gently pushed away because dealing with my mom being gone is hard.
I’m the last person who can be angry about this – I have pushed away many people this year. At least, in the few months before she died and the first few after. Again, I am not complaining about anyone’s actions – I doubt anyone had the intention of purposefully shunning us from their lives. However, not being invited to birthday parties, brits, and other family events has definitely contributed to the sense of loss.
If my mother’s death can be seen as a pebble thrown in a pond, each ripple around it is one more aspect of our life that has completely changed as a result of her loss. Her physical absence, with all that comes with it, followed by changing family dynamics, family who has moved on without us, friends who don’t know how to talk to us, and there are probably more ripples that I have yet to discover.
I’m very lucky, however. With all that I’ve lost, I know there is so much I’ve gained. I have a great family who, despite everything, is still very close. We may not see our father as often as we’d like to (his new wife lives far from us, so they split their time until her 17 year old finishes high school), but when it comes down to it, there’s no doubt in my mind that he will be there when we really need him.Plus now we have 2 brothers. We always wanted brothers.
People who used to provide emotional support have been replaced with others. I have wonderful friends who, luckily for me, did not give up on me when I stopped talking to the world. And lastly, but totally not least, The Boy and his family, who couldn’t possibly treat me as more of a family member, including the teasing, calling when I’m sick to see how I am, and buying me random gifts because “she saw it in the store and thought of me.” That’s a really big gain.
March 15, 2010 at 4:10 am
“People who used to provide emotional support have been replaced with others.” True. Sometimes this is a difficult thing to realize because we sometimes feel guilt in “replacing” that person who is gone. But it’s a natural progression of life and something that we should take comfort in knowing that many of us truly are surrounded by amazing people with family and friends.
Great post even at 3:30am. Thank you!
March 15, 2010 at 4:14 am
Thanks for your comment (at 4:15 am… OOF). Actually, the people who have been replaced do not include my mother – I don’t think that particular one CAN be replaced.
But yes – you’re right about the rest. And in all honesty, people’s friends change throughout their lives anyway, regardless of major life events.
May 28, 2010 at 5:18 pm
yeah all of u guys are so right i have a mom that has died from brain cancer and i’m nine years old my moms death has really taken it’s toll on me and my family.my sisters are living together and they used to get into big fights when they are teenagers it is so weird now i’m going to live with my aunt and uncle that live in the states and last night i had a dream and my mom was diseased in it but i was the only one that could see her besides my dad it was so strange but i have to go i have to go to school.
March 15, 2010 at 4:59 am
I agree with you, Talia. People can sometimes, in very small ways and for fleeing moments fill the void of my mother, but no one or nothing replaces her. I had been married for 5 years when my mum died, and it was very hard in those early months to navigate my relationship with my mother in law because I didn’t want her as a replacement for my mother.
The #1 thing I didn’t feel prepared for or understand about losing my mother was that I was also losing the company of someone who could tell me stories about myself from times before I could remember (eg, stories about me as a baby) or stories that I’ve forgotten for such a large chunk of my life. When my mother died, I had been out of touch with my dad for over a decade, so I had no relationship with anyone who could tell me stories of me as a child or baby. It was kind of unsettling, honestly.
March 15, 2010 at 8:19 am
Another insightful and lovely post
I hope you were able to finally fall asleep.
March 15, 2010 at 1:54 pm
I don’t think I’ve experienced enough hardship in my life to have anything insightful and intelligent to say, so I guess I’ll have to settle for saying I hope you find enough ease and comfort to sleep at night soon.
March 16, 2010 at 12:27 pm
Good girl! Thinking of what you have gained will help you get through this. However, you must know, that your mum didn’t leave you. I do believe in power of spirit and when you thinking about your mum, send her some good, positive thoughts. I sometimes feel a positive vibration from nowhere, like a wind in my heart, and my grandma told me this is the way my grandpa (who have passed away) says Hi to me. I believe you get that feeling too!
March 23, 2010 at 7:43 pm
Great post! I am away from home, working on my son’s computer. I plan to republish your post on Wednesday, 24 March at Being Cancer Network – http://www.beingcancer.net
Take care, dennis
April 13, 2010 at 2:38 pm
I feel for you too, having lost my mom to brain cancer.. It will be year for us as well, two days after Mother’s Day.. This past Easter was a hard one.. My Mom’s friends surrounded us with love before, durning, and after her death, but its been a long time since we have heard from them.. Maybe its because they don’t know what to say, are dealing with their own grief, or “just the natural ebb and flow of the tides of life.” But I too am not reaching out to them either…I wish you the best in your healing.. Know that I think of you often.. Take care
May 12, 2010 at 9:39 am
I can sure relate to this post. My mom died of lung cancer (also went to her spine/liver and eventually her brain)on March 2nd of this year.
My dad died 15 years ago- so I don’t have anyone in my life that can share my early history with me. It’s like you have to grieve the information that was lost- as well as the person. Almost as if part of your identity is gone with them.
May 12, 2010 at 2:55 pm
I’m sorry. You’re right – that’s a huge thing for me. My dad’s still alive and well, thank goodness, but it’s your mom who knows all that stuff about you. It’s definitely a major loss – the connection to your past.
July 26, 2010 at 2:43 am
my father died when i was 8 and my mom died 4years ago. my heart was broken the day she died and there are still nights (like tonight) where i cant sleep because all i can think of is the person who was my rock now being lost to me.
i just wanted to say thank you. i was looking for comfort and i found it here. i experienced what you describe in the loss of the extended family and friends, and so this blog just made me realise im not alone. ill never forget who my mam was, and im sure your mom would be proud to see her daughter making a positive impact from something so hard to cope with.
August 7, 2010 at 12:57 pm
Thanks for your kind words, Ella. I’m so sorry for your double loss. I’m happy I was able to help, albeit it in a small way.
Lately a lot of people (see comment below) have been telling me that they experienced this as well. This saddens me to the point of tears, but comforts me. Now I know that it’s just a human trait, not just my family or something cultural. So thank you, too.
August 6, 2010 at 5:08 pm
I am so glad I found this blog. I lost my mother to Pulmonary Fibrosis 6 months ago. Not a day goes by that I think of her and wish I could talk to her. My extended family and mom’s friends were all around when she was dying and afterwards but now, they are no where to be found. No one calls me. Her brothers and friends never call to see how me and my brother are. I have reached out through email and facebook but get no replies. They don’t even seem interested in seeing her house to say goodbye (we sold it last week). All of my mom’s belongings are in boxes in storage. I feel so alone and isolated. It is good to know Im not alone. I too feel like a part of me died with her. She knew me more than I knew myself. I miss her so much.
Terri
August 7, 2010 at 1:01 pm
Hi Terri,
As you already know, I can identify completely with how you’re feeling. All I can say is that things are getting a bit more on track now, at least more than before. Some people who pretty much ignored us for the first year are making efforts to reel us back in, while others are trying to pretend the last year never happened and trying to “pick up where they left off” so to speak.
If you reach out and they don’t reach back – don’t even think about it twice. It’s not worth your time. You made an extra effort to connect, and they made the extra effort to do the opposite. Move on to the people in your life who DO care. It’s not always family that gets you through everything, so just hold on to whoever helps. Sometimes blood is just a liquid.
December 19, 2010 at 11:19 am
I read your blog. I lost my mom on November 17th at 7PM she took her last breath. She was never alone and her best friends and her two daughters were there til the end – holding her and telling her how much we loved her.
As you said, we lost more than just loving giving mother, we lost home. For me, I only got 2 years with her because she had moved to Israel and I followed a year later.
I so regret spending so much time worrying about learning the language, finding an apartment and getting employment that I put these things – so trivial now, in place of seeing her more.
Oh God, how I am in anguish. I am 60 years old and feel like a little girl who lost her home and mom. My dad never was a father, so my sister and I feel we lost everything.
I called her all the time about everything. She was 82 years old and was a student of life. I taught her Skype on the computer and email and she loved it and used it daily. What a spirit. The house now is a shell.
We had to hire someone to live with my father – so when we are there, literally, the life and spirit are gone. My father’s deadness permeates the house. It is so painful.
I need to go on and I know that no one wants to hear about my pain anymore. Thank goodness for my best friend in Puerto Rico.
It is so hard. So awfully hard and painful. I prayed so hard for a second chance – that she would have the operation and they could extend her life. That was all our hopes and dreams, but the cancer had spread and they could not save her.
At least I spend days and hours by her side telling her my regrets and how much I loved her. She was lucid until the end good and bad. She knew she was never coming home and would never see her granddaughter and great grand children grow up, she wept so bitterly.
It was so hard to watch my mom die. I loved her so. I miss her presence beyond description.
January 7, 2011 at 12:28 pm
Hi Joyce,
I’m sorry I didn’t reply to you sooner, I’m on a 4-month trip through Australia and Asia and haven’t been online much.
I always felt that I need to “move on” and stop talking to people about my pain, but the truth is that you can’t just tell your heart to feel something it doesn’t. If you can’t make yourself fall in love with someone, why could you tell it to stop hurting?
I don’t think that you being 60 and her 82 has any relevance to how you feel. The difference between you and me is that you had her for those important steps, like marriage (I assume) and having children – and great grandchildren – but it doesn’t make her absence any less painful.
I guess the one thing that is important for me to say is don’t have regrets. You can’t live that way. You need to be at peace with what you have done before, and at most, use what you’ve learned as a consequence in later actions. I could regret a million things from here to the next millennium, but it won’t do anything but make me feel worse. I wrote a post about this, just in case you’re interested: http://daughterofcancer.wordpress.com/2010/01/19/maybe-i-should-have-regrets-but-i-dont-i-have-learning-experiences/
I, too, miss my mother’s presence, just enough time has passed that I know now that I can live with it.
January 7, 2011 at 1:07 am
I know exactly how you feel I lost my Momma Sept 10 2010 at 6:30 am..I too was holding her hand when she took her last breath ..I am haveing a hard time dealing and beleiving that she is really gone ..Some days I am ok but then there are days when all I do is cry..
I too feel lost my Dad died years ago and my brother died in 2001 at the young age of 43 of Lymphoma and he fought for 2 yrs before that with everything he had to live and the cancer still took his life..
I feel so alone and lost alot of the times I have no other siblings and my kids are grown and live in other states..My husband thinks ok its been 4 months you need to get on with your life stop grieving and deal with it..Its not that easy and no one know till they are in that situation and then sometimes they still don’t know..Everyone deals with grief differently and it takes different amt of time for each person..
It too for me was s hard to watch my Mom die and fight for every breath ..My Mom had to be put in a nursing home a year before she passed she had had a deblitating stroke that left her totally dependent on others for everything and I couldn’t do it on my own and didn’t have the money tio hire someone to help me..So I have the guilt of having to put her in a nursing home also as that was a nighmare in itself..Please feel free to email me as I really need someone to talk to ..Laurie
January 7, 2011 at 12:34 pm
Hi Laurie,
I’m so sorry about your mom. I wasn’t actually with my mom when she died. She was technically alone – it was at 1:30 am or so – but my mom was way gone by then, she hadn’t been lucid in weeks.
You are describing exactly what I was like – one moment OK, the next moment crying nonstop. You have been through SO much, I can’t believe anyone – much less your husband – would tell you to just get over it. Like Joyce said, he must have no experienced loss, not to mention that men and women go through grief differently (I think it’s just easier for us to express it, or we don’t bother holding it back in the same way).
That said, I hope you DO have something going on other than the grief, like work or volunteer work. I am by NO means saying get over it, but if you have other things to “distract” you, from experience I can say it helps. Find something that excites you – for me it was ballet. It can be a sport, or an art, or collecting stamps – whatever it is that will give you something fun to do that you enjoy.
And don’t feel guilty about the nursing home. We had to do the same with my mom, and it’s terrible, and I still feel bad about it, but I know that it was the right thing to do at the time, and I don’t think my mom blamed us or anything. She knew what a toll it was taking on us anyway. Please please please don’t feel guilty. Treasure whatever time you had (which sounds like a fair amount, seeing as you have grown kids), and focus on that.
Of course, you can email me whenever you’d like.
January 7, 2011 at 9:41 am
Dear Laurie: You have gone through so much. Your husband obviously has not lost many people that he loved or he could never say that. I spoke to a grief counselor and she said some people go thru at least a year of grieving, some more. There is no right answer – we are all different and had different relationships with our loved ones.
I can only tell you seeing my mom die slowly, and being with her was the most heart breaking time of my life. She was alert and we talked. She had many friends and family constantly calling and visiting until she became too weak. My sister never left her side. They were best friends. They did everything together. We all were in each other’s everyday lives. We shopped together, met for lunch or dinner, called all the time and emailed all the time. Every street, every place I go, I see my mom. She was so happy that we all moved to Israel. We were a small family but stuck together.
She was a young 82 and ran around all the time with her little shopping cart and special walking clogs. She made many friends and over 200 people came to pay their respects to family and my mother. I am crying as I write this to you for I am indeed still in shock. She died on November 17th at 7PM. We were all in the room when she took her last breath. My God, I fell apart screaming Mom, I love you, I did not want to lose you.
What I wouldn’t do to get her back, what I wouldn’t give.
Love,
Joyce Kuras
January 11, 2011 at 5:46 am
Today my mother told me that she is dying of cancer, that she only has a year or two left. I’m not exactly sure on how to take this… I knew she was ill but I always thought she would get better. I’ve never had anyone in my life die, and I really do not know how to deal with it. Can you provide me with some insight? I do not have much family here, we immigrated to Canada from Russia. My mom is the rock that holds my whole family together. I really cannot even imagine what it will be like without her, it breaks my heart. What sort of things should I do for my mom or with my mom? What sort of things did you wish you had done when you had the chance? I really do not know how to take advantage of the time that she has left… all I can do is sit in my room and block the world out. Sorry for the depressing message.
Maria
January 11, 2011 at 6:01 am
Oh, Maria, I am so sorry for you and your mother both. I have a few pieces of advice, which may or may not be useful, so listen to them only as much as your heart dictates:
1. Don’t try to anticipate what life will be like without your mother. Honestly, it’s as bad as you can imagine, so there’s no point in dwelling on it now when she’s still here.
2. If you can, get your mother to either write down or share with you verbally stories of you as a child. Or record them on tape or digitally. I definitely wish I had more of this type of thing, plus a recording of my mum’s voice.
3. It is unlikely you will ever regret the time you spend with her now. I moved, with my husband, nearly 1000 miles to live with my mum for the last 6 months of her life. It was a completely chaotic experience for us and our careers — but it was also the right thing to do for me and her.
Best wishes to you & your mother, Maria.
January 11, 2011 at 8:25 am
Thanks, that is some good advice. I live two hours away from my mother… but I have a newborn and my husband and I are just starting to go to school and get our life straightened out. I wish I could be here with my mom, but she tells me I need to go to school instead. So I’m king of conflicted. I will for sure get a video or a voice recorder and tape her voice.
February 16, 2011 at 9:52 am
I came across this blog as I was trying to find how people have coped with this. My Mom had a broken backbone due to severe osteoporosis and was immobile for most of year 2010. It was a painful year for her as getting up from bed or chair was a herculean task. Then by Dec mid 2010, she started getting severe pains in her stomach. She was taken to hospital and was diagnosed with malignant Ascites(cancer origin not found.. it had metastised though) by Jan first week. By Jan 28th she was gone. She was given a chemo even thought she shouldn’t have been given one.. and had an aweful doc which really accelerated her deterioration in the hospital. It was traumatic to see her condition for the last 4 weeks of her life. I couldn’t even see her due to her bing shut in ICU and hospital rules only allowing an hr or two in evening hrs (most of the time she was too tired to even talk to open eyes). I live in US and I could only fly down to India by Jan mid. I could only meet her briefly everyday during the last 2 weeks of her life. Finally after almost a month of her being in the hospital, we got sick of her lying in a vegetative state in hospital and not even being able to see us. Docs never gave us any clue.. and wanted to reap profits by extending her stay in hospital. So we pulled her out and got her to our hometown which is about 2-3 hrs away. There we got to see her in the local hospital by her bedside for the last 32 hrs of her life. She was barely alive.. but she was happy the day we took her back to hometown where she breathed her last in the local hospital. What killed her was she had caught penumonia after chemo and it got only worse… she breathed her last on Jan 28th. It was quite traumatic to see my strong mom in bed, being fed with tubes and begging us for a sip of tea or even a drop of water.. which we were hesitant to give as she could choke even on a spoon of water. In the end we couldn’t even make out what she was trying to speak.. even after lifting her oxygen mask to catch her words clearly. The sad part is she had never seen my son.. 15 months old.. and she had really longed to see him. But I had to leave him with my in laws so I could focus on her. Now she is gone without knowing what he is like.
When she was ok before December 2010, I’d call her from US everyday to make her hear her grandson’s voice. And that was perhaps the best part of her daily routine. I wish I had given more time to my mom when she was alive… I really wish. It’s perhaps easier to see a loved one go quickly than see them suffer so much and then be gone. I miss her .. I miss her recipes.. even her micro management of home affairs. There is a dull pain that crops up sometimes. These days I am spending some time with my dad. My brother and elder sister have gone back to their families and lives. The home is quiet without mom.. as mom’s are the ones who keep a house alive. I don’t feel like doing anything. Sometimes I cry when I think of her.. sometimes I don’t. This place that I grew up suddenly doesn’t feel that rosy and cozy anymore.. and oh, I how I always loved my childhood home.. but now it seems to bite me.
Can I ever connect with my mom ever again? I know they do some shows where they help you connect with after life.. is that just a big hoax. How will I ever tell her .. how much I regret not making more time for her. Why did she have to go through so much suffering before she passed away? Why her? Sometimes it’s her suffering that feels more traumatic than her passing away.
March 24, 2011 at 5:23 pm
I’m sorry for not answering you soon – I was in Japan when you wrote this.
Thank you for sharing your story with me. I ask myself all the same questions, other than the reconnecting one – I really don’t believe in those TV shows. I hate thinking that she’s “here with me” or whatever, but every now and then someone walks by me with her perfume, and I catch a whiff of her and think, who knows, maybe she is.
May 11, 2011 at 6:00 am
My mom just “disappeard”….never came back…I was eight when she passed of cancer. We didn’t live w/Mom so she was “someone” who came and went….just visited now and then…nothing constant…
I pretended to cry…like it matter when we were told she’d passed..but in reality…it didn’t mean anything to me….then….
AS the years passed and I grew..her “presence” importance became more more important to me…She was a beautiful dark eye/haired beauty…five’ two”….me..I’m five’ seven”, blue-eyed blond..pretty plain…Her family never forgave me for not resembling her physically in anyway…such a burden for a child to carry…I believe I have very bad issues of abandoment which has affected my relationships w/everyone….I used to look in crowds for her…as if she’s not really gone…when my father passed,,,I finally lost “both” my parents….it’s then I realized “both” parents were gone…as if I lost them both at the same time….I still look for that solidarity of a Mother’s love in every relationship I have…does anyone else??
June 7, 2011 at 11:28 am
Wow, I’m so sorry. That’s so sad. Just so you know, I felt the same way when my mom died, and I was 31. I don’t think it’s really a function of age, although of course it’s harder to grasp at 8.
June 6, 2011 at 8:07 am
I really feel for everyone who has ever lost a parent, my mother passed March 25 2011. She died in my house after a battle with cancer. I still can’t believe it happened, I know she’s gone but it can’t be true. It was hard right after she passed, the funeral family and friends, but after everyone went back to their lives it got really hard.
Feels like my heart break a thousand times each day. I finally understand what love really means. My mom & I where very close, good friends, I never knew how close until she was gone.
I have always thought of my mother & smiled, I’m glad I have those memories. My mom was only given 3 months to live, I’m glad I spent that time with her.
My mom’s motto was “live your life” — I’m trying hard to honor her memory.
June 7, 2011 at 11:25 am
I’m so sorry for your loss. Sending you hugs.
August 26, 2011 at 1:13 am
I lost my mother on July 20th 2011. She was my best friend and the kindest sweetest women i have ever known. She suffered for 7 months in a NHS hospital by doctors and nurses who didn’t care for my mother in the way she required to pull through. What a waste of a good persons life.
August 26, 2011 at 4:03 am
*hugs*
I know how you feel.
My mother is in great pain and they will not even see her until her next appointment (next week). I know that the lack of doctors/nurses is a big issue, but it is so depressing to watch someone you love so much suffer and not get the help that they need.
September 5, 2011 at 7:28 am
My mother died a month ago from melanoma cancer and at first i was sad and couldn’t sleep but was able to get through the day because with all the planning of the funeral, viewing and everyone sharing there thoughts with me it all kept me distracted but now i feel like the more time passes the harder and harder it gets every little thing reminds me of her and theres moments when im fine and then theres moments when i just cry and cant stop but i know i will get through it and thank you so much for sharing this post it lets us know that were not the only ones dealing with something so hard. I dont know the difference with loosing your mom when your younger or older but its super hard for me because im nineteen years old and knowing my mothers not going to be able to see me succeed in life, get married, and have kids is so hard but atleast i was able to see her get married 2 weeks before she passed away it was such a beautiful moment and something i will never forget and atleast i can take on life with the person my mother taught me to be and im so thankful for that ! love you mom
September 18, 2011 at 3:08 pm
Hi Cristina, I’m so sorry for your loss. I was like that too, crying nonstop, but it passes and ends, and …